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13th September 2024


Our son was diagnosed with very severe CAS in October 2023 and we started DTTC therapy privately in Jan ’24 (aged 4 & 4 months) due to no support being offered by the NHS. Before starting therapy our son Will had no words and due to the effectiveness of the therapy he has made incredible progress. When the evidenced based therapy for severe CAS is DTTC why has Oxfordshire chosen not to offer it? Why has Oxfordshire chosen not to support this therapy when other counties have? I understand you provide Nuffield but this is for children with moderate or mild CAS. Why please did our son’s NHS SALT report for his EHCP assessment state that that the service being offered by the NHS meets his needs when it doesn’t (agreed by his speech therapist)? His speech therapist (Jemma Whitton) didn’t write this on her report so who included it please and why? The EHCP is a legal document so if a mistake has been made please can this be addressed urgently. If the NHS/local authority continue not to be able to provide for children with severe CAS please can his private DTTC therapy be funded by your service? I feel incredibly let down and penalised for living in Oxfordshire. I would be very grateful please for your help with these questions. Jemma Whitton has been a fantastic support throughout the last couple of years. I of course do not see it as Jemma’s responsibility that the Oxfordshire SALT team have decided not to provide DTTC therapy and I am very grateful for her help. Her service has been excellent. I look forward to hearing from you.

Suggested improvements
Provide DTTC therapy to meet the needs of my son who has very severe apraxia of speech.

Dignity/Respect
Involved
Information
Staff
Experience