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11th March 2023


I had a lot of contact with the nutrition team but their hands are tied when it comes to dealing with consultants. [name removed] and [name removed] stopped coming round to see me and I had no nutrition for so long. They saw me throughout the 10week stay and were amazing. This stay went so bad because I disagreed with the lead consultant. I didn't see the team and they wouldn't even make eye contact when on the ward. They had an opinion but couldn't share it because of the doctors. They saw me having to restart and we don't know why everytime they replaced the tube or when I got my PEJ and this one. They gave me an unrealistic feeding regime which they knew was unrealistic but they didn't come round and check on me. I thought them to be so much better than that. It's sad to see.

Suggested improvements
Maybe continue talking to the patient and listen to them about what is going on from their view. Not to be just forgotten and then treated like I had leprosy!






Staff
Safety
Listened to
Information
Involvement
Ease and Accessibility
Facilities
Experience