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19th July 2021


The stoma nurse was polite, friendly, helpful and informative. He suggested a new product to try so I will give that a go, but I can't say yet whether it will help. Regarding wearing the clothes I want, that's not linked to this but clothes have always been tricky since surgery and I expect they always will be, I don't suppose there's a solution for that! The same applies for resuming "normal" activities. I would say life is just a lot less convenient with a stoma - facilities etc. The stoma nurse asked about an examination and respected my not wanting to do that, and offered for me to send photos via email, so I appreciated that.

Suggested improvements
The stoma nurse was excellent and I haven't got a prejudice against male health care professionals, but I suppose for something so personal (especially if an examination is expected) then I would personally feel more comfortable with a female. So maybe some choice there, if possible, would be beneficial. I suppose maybe it's worth bearing in mind the level of embarrassment/shame people with a stoma may experience and how difficult it is to talk about once a year with a stranger. I don't mean any criticism in that, but for me at least it is very anxiety provoking and embarrassing, although at the same time I know it needs to be done. Maybe a bit of warning would be good rather than being offered appointments unexpectedly for the same day, to avoid panic, and it might also give time to plan what to ask, or to observe skin health etc to know what to report. Although then there is more time to worry about it, so I don't know!

Experience
Dignity/Respect
Involvement
Information
Staff
Listening
Manage Condition
Activities
Consent