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22nd November 2023


1. The doctor for my previous appointment arranged a blood test so that it would be available for my appointment today. 22 11 23 2. I called into the Yapton surgery on the 21 11 23 because the results taken on the 15 11 were not showing on the Airmid app. The receptionist confirmed the results had been received. I asked if the results could be added. They said they would try to arrange this. 4. I followed up today and was informed that the records should be visible. I have subsequently checked and they are not on the Airmid or the system on line instances. This is disappointing as this has not happened before!

Suggested improvements
4. Without access to my records, the doctor said that my records showed that I had not improved as expected. At six months after the initial diagnosis and numerous appointments it seems that my condition may have been misdiagnosed. 5. This is deeply disturbing as I have flagged up my concerns. I have experienced pain, received what appears to be contradictory advice and now made no progress! 6. In my opinion, If my care had been more effectively managed, perhaps I would have received more effective treatments. I have never been told at any stage, what dose of steroids I should be on, told it was ok to vary the dose during flare ups and as of today I have returned to 15mg! 7. Let’s hope that an effective diagnosis may be made next week.

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