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Written by a NHS patient
12th October 2023


Sometimes I would ask questions and receive a generic response or reference to an old attachment that I have already read that doesn’t answer my question. My nurse was pushing me to end the titration and asked me again, I responded with questions about what happens after discharge and she responded by discharging me! I felt so neglected. I didn’t even get an answer to the questions I asked. I also now have no way of contacting her as she was immediately removed from my contact list on the notes section. I was quite upset and annoyed when I when onto the portal and found this out. I feel like my medication works okay, but I’m not satisfied that this is the best one for me. I feel like now I am discharged I have no way of trying different medications that may suit me better and now I would have to start the refferal process again from scratch which will I include long waiting times all over again!

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