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Trinity Hospice 2023-02-28 Person 1 5 0

We were under the hospice at home team as we chose quality over quantity once my husband's diagnosis was terminal. Two weeks prior to his death, we had our home visit cancelled, then the following week we received a "how are you doing" telephone triage call. The day before my husband died I had to call out the night team, who administered additional drugs to help my husband's breathing easier. These unfortunately didn't have the desired effect and by morning I was frantically ringing to get the support my husband needed. On the morning of his death, I rang the hospice and CN'S for the Palliative care nurses, begging somebody to assist him (presuming they would visit) instead we got a very sympathetic but non medical team member call round to our home. My husband's death was beyond traumatic, he died struggling to breath, with a mask of terror on his face. His final days were anything but quality. The last words he uttered were "help me" This was anything but quality

You could have visited my husband for both the weeks prior to his death. Then you would have seen how much he had deteriorated. Once a relative is crying and begging for help on the telephone, and you acknowledge their breathing is horrendous don't send a non medical person to their home. My husband chose to die at home, but your service doesn't offer a calm nor dignified death.