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Written by a carer
12th June 2019


As a family who was brand new to the experience of palliative care, the fact that various parts of the service were provided by different agencies was a bit confusing. We had District Nurses, Carers from Age Concern and palliative care plus respite care from Cynthia Spencer (I think). However the family could not fault the quality of care that my mother received in her final days - it was professional, sympathetic and organised. All our questions as a family were answered. My mother could be at peace in her own homw. My only comment would be how hard it was to get my mother out of hospital into palliative care - our (and her) hospital experience was disjointed and frightening. She was so distressed and yet the doctor's kept insisting on treating her, even though her illness was clearly terminal. We were just so thankful and grateful to get her home and into palliative care which was what she and we wanted. So I thank everyone involved in her care at home from the bottom of our hearts. This should be available for everyone - not just those who have middle-class, determined children to fight for them. If you want to die at home with appropriate support, that should be allowed. Thank you to Cynthia Spencer and the other agencies for supporting Mum and our family in this.

29th July 2019
Response from Cynthia Spencer Hospice

Thank you for your feedback on how you valued the care provided. Unfortunately, I cannot comment on the transfer from the Hospital as we as a service don't have control over this. We require the hospital to refer to our service and once this is completed we will endeavour to transfer patients as quickly as possible but is dependent on bed availability. We are also working as a County to try and reduce the disjointed nature of care at end of life, with it being provided by so many different organisations. We are working on how the many organisations can work together to ensure there is a seamless transfer of care from one organisation to another and in the future coordinated by one organisation.

Recommend
Dignity/Respect
Involvement
Information
Staff
Safe
Supported
Spiritual understanding
Cultural needs