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4th September 2023


Our son has long covid. The physiotherapist wasn't aware of it. The next appointment I insisted weeks before with the long covid clinic and physiotherapy to contact each other. Because that was what the long covid clinic promised us to do, but it didn't happen before the first visit. So it was very frustrating about the physio not knowing what to do. We left there feeling terrible. When for the next visit - after I calling both physio and long covid clinic several times - there was no contact between both - I cancelled the appointment, even explaining the reason. Now our son has a new appointment, but both parties didn't contact each other yet. And even telling physiotherapist that our son can't come early in the morning because he is too tired, he was booked in at 8:45 am (again).

Suggested improvements
I called physio explaining our experience and frustration and that after physio and long covid clinic finally contact each other, we want our son to have another physiotherapist, because the experience with this person was really frustrated because of not understanding what is going on. We have had some very frustrating experiences and also good experiences on the NHS now. And because negative experiences drains our energy - which level isn't so high after such a long time looking for help - we want to avoid contact with energy draining people who do not understand the situation the most as possible. And now we have a new appointment with the same physio at a very early time in the morning. This physio therapist even called me last month and asked how our son is doing. But even asking, the interest to really listen wasn't there. That is how I felt. I felt really sad and frustrated after this call and all my energy was gone. So I do not need to speak to this same person again. We will be having an appointment with the long covid clinic next week where I will discuss this and explain that we can't see this same person again. It just doesn't feel right and drains our energy. Sorry for that.

Experience
Dignity/Respect
Parent Dignity
Involvement
Information
Staff
Suitable Location
Next Steps
Appointment
Support