Share review of Community Services - Oxford Health NHS Foundation Trust

Community Services - Oxford Health NHS Foundation Trust 2024-07-04 Person 2 5 0

accessible location for me, i was still under care when out of inpatient, my previous and current nurses are good.

I’ve been with your team since 2020, unfortunately i’ve had nothing but trouble. I was first referred by my GP to your service when i was diagnosed with Anorexia Nervosa and understandably during Covid the treatment was very different to what is usually offered but i was regularly seeing my nurse on MS Teams, my parents received support from this nurse on how to handle the situation they were dealing with and they were given a safe space to talk and come to solutions, for them i’d say it was a positive and helpful thing for them however, for me i’ve had nothing but issues within your care. I was admitted to inpatient for 5.5 months and came out having semi- regular appointments and then completely no contact for over a year after not being discharged or any communication with your team until August 2023 when I had to reach out myself in distress. I was then told the system had crashed and all of my notes had gone which in itself is appalling. I was given multiple nurses and therapists, none of them lasted the entirety of any course they had started with me which meant starting fresh with someone new, i understand might not seem like a big deal however as someone who has to build a relationship with a person who’s in charge of my care in order to trust them, this proved extremely difficult and demotivating to keep going with your team as i would trust and open up, for them to be taken off my care, leaving me feeling vulnerable and having to deal with my emotions and traumas on my own instead of the support your service was meant to offer. I have had appointments where i’ve asked to see a doctor about a medication review and i was told they’d get back to me and never did, i’ve also had one of your team members sit in front of me and google the answer about whether i can go back on my medication, this same member of staff then went on to invalidate my concerns about starting a new medication in fear of weight gain and said ‘every medication makes you gain weight, even painkillers’ which was not helpful nor professional for someone who deals with an eating disorder patient. I was diagnosed with BPD/EUPD in your service and left with nothing but a leaflet to read instead of actual support when i was struggling which again left me helpless and invalidated. I’ve been put in group therapies and waiting lists to groups i’ve said on multiple occasions i don’t find helpful for me personally and been given another therapy to do which has no input on what i’m struggling with the most and asked specifically to help with and was told that the waiting list is still 5 months long. I have not had a medication review or seen one of your doctors of any sort in over 2 years, I went for a blood test a few months ago to which i never found out the results as they didn’t ask for approval from my GP and i called your service and they explicitly said they cannot tell me as they don’t deal with blood results. I’ve been passive aggressively spoken too because my nurse’s contract was terminated and it was my fault that they hadn’t seen or spoken to me in 2 months to sort it even though that isn’t my job. I had an appointment booked for 2 weeks and the lady i had said she didn’t have any time to read the notes my previous nurse had made throughout my course with her before the rest of the notes from 2020 had gone. I’ve had a therapist tell me i should make more of an effort in the way i looked for our appointment as it’s meant to be professional therapy and i was battling severely with a depressive, BPD episode. Overall, the state your service is in is shocking and had it of not been for my current and previous nurse, i would have probably been more successful helping myself without your support and have been close too many times. The disrespect, unprofessionalism and ignorance some of the staff here have is disgusting and the things i’ve disclosed isn’t all of it. Im not surprised patients suffering particularly with any sort of Mental Health issues become revolving door patients if this is the consistency and level of care you give to all of your patients.