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Written by a patient
18th March 2016


I have recently undergone major spinal surgery in which I had lower 4/5 fusion and pins and rods placed around the area to stabilise my spine. Sections of my lower spinal column had become unstable and slipped inwards to an amount of 14mms in 3 years of suffering with burning pain in my legs and lower back. I was at the point of not being able to walk more than a few hundred yards, could not stand more than 5 minutes without burning pain and could not turn over in bed without having to sit up and turn, because I could not lean backover without catching a nerve in my back. I tried a sacral epidural injection which gave me slight relief for a few weeks but soon was back to minimal movement. Mr Aneiba recommended an operation but I was scared; not having had any operations before, hence why I tried the injection. I also had a consultation with one of Mr Aneiba's team, who sent me for an MRI and XRay it was clear that the slip in my spin was getting worse year on year and there was really no alternative but to try the operation as I was virtually immobile with considerable pain. I decided, discussing with Mr Aneiba and his colleague that I would go ahead. I was still however scared. Anyway, as part of the preparation for the operation, two weeks before, I visited the hospital again and saw an NT Spinal Nurse; mine was called Jason, and he was excellent and put my mind totally at rest, together with that of my partners. We went with numerable questions and he answered all of them throughly and with confident knowledge. We came away calm and confident we were in the best of hands. He assured us he would be in the operating theatre on the day. The preparation and operation went fine; I was in hospital at Stockton on Tees 4 days, and, once the nurses were happy I could fulfil certain necessary functions, had an XRay and saw the Physiotherapist to make sure I could climb stairs up and down, I was released to go home to recover. Mr Aneiba called to the ward on the second day to see if I was recovering OK and, as it was his day off, left his telephone number with the Nurse in case of any problems, which I thought was excellent. I would recommend him and his team and be assured they will do their best to make sure the operation goes well and they are there for your recovery also. I have just had my 6 week checkup and Jason and Mr Aneiba were there to check my progress; I still have some residual pain in the opposite leg, which gets better with movement as the morning progresses. They checked me over, and there is still some swelling at the site of the incision, which will go in time as they think will the pain. I do however, have full flexibility back, which is great. The only constructive suggestion I could make would be to see an NT Nurse earlier in my consultations. As Mr Aneiba doesn't have so much time for each initial consultation, perhaps an NTSpinal Nurse, like Jason, could be scheduled in to give more time to the patients when they are considering surgery. Howewver, in my case it was not possible to have the surgery sooner, as I had no one at home to care for me post operation. This really is necessary as you are very sore for a few days and a bit frightened to move too much. I have my next appointment in 3 months. Thank you to all the team.

Trust
Listening
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