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Written by a NHS patient
8th August 2023


The service is primarily online-based and does not require face-to-face appointments. This, of course,, comes with pros and cons. Pros: - Timely replies and decisions are good when experiencing worrying side effects - Can respond whenever is convenient for you, so there's no need to take days off from work - Admin, Psychiatrist, and Titration nurse are all available to contact from the online portal. - Online portal holds all the documents, messages, and forms you have ever filled out, so it's perfect for records. Cons: - Lack of Face to face time gives a dehumanizing feeling, combined with the fact that the service is in demand, there are times when you feel like a number. - Patient experience and quality of care during titration can be reduced if they wish to get more people into the titration process. As the service is in high demand, I felt pressured by the titration nurse to settle on a dose stating that the titrations times have now changed despite the FAQs stating the titration period is as long as the individual needs, which is very contradictory and leads to reduced time for side effects to settle. Quite possibly leading to misobservations from a patient. - As its mainly text-based communications, a lot of things don't always transfer to the staff member in question (i.e., Urgency, the effectiveness of drugs) - Miscommunications: Sometimes the titration nurse and the patient can have different understandings on a matter i.e., How to take observations and fill out a form. Do you do the obs from a pre-med point of view? or is it from the view of the last dose? This wasn't made clear and led to skewed obs reporting. - Trust based: While I had no issue, patients with an addictive personality may abuse the medication and simply lie to get more. This is hard to discern through online means. Ultimately the staff was great. They are just working with the conditions and structure imposed on them. The delivery method through mainly online means can give an impersonal touch to the patient experience and gives the impression that the service just wants to churn out the numbers of "treated" patients.

15th August 2023
Response from Psychiatry-UK

Firstly, thank you for leaving such a detailed review. I know your feedback will be extremely helpful to others who are researching our service. Working with an online service brings both pros and cons, as you have noted, and we know that some people will feel more suited to face-to-face treatment. It would be really helpful to be able to discuss some of the issues you have raised in more detail, and I wonder whether you would be happy to get in touch with us directly to give more detailed feedback. If so, please do reach out to our Patient Experience Team at: experience@psychiatry-uk.com. We are genuinely sorry to hear that you felt pressurised during titration, since this process has been limited to three months. This change was introduced to reduce the titration wait time for patients who struggle post-diagnosis without medication. You can read more on our blog here: https://psychiatry-uk.com/update-on-adhd-titration-service-for-our-adult-nhs-patients/ Finally, we are pleased to note the beneficial aspects of our service you have experienced, and particularly the positive interaction with our staff teams. Your feedback has been valuable; thank you again for your time. Finally, we are pleased to note the positive aspects of our service you have experienced, and particularly the positive interaction with our staff teams. We wish you the best of luck in your onward journey.

Recommend
Dignity/Respect
Involvement
Information
Cleanliness
Rating not given.
Staff
Safe